Living with PTSD

Back on the day 6 years ago that I was finally diagnosed with PTSD
It was such a relief
To know I wasn’t crazy
I was just broken
a traumatised soul
But
In the identifying
and the confronting
and the search for answers
I had no idea what lay in front of me.
I knew what was behind me
And I wanted no more of that
So I turned forwards
started the healing
facing the demons
But as I did they would attack with greater ferocity
biting at my heels
attacking with force the closer I got to identifying each one
Sometimes it felt like one step forward and ten back
I would break
and fall apart
thinking what was the point
it is all just way too hard


But finally
I found my courage
I sourced that inner strength
that had maintained me throughout those traumas
I was able to embrace the education of my mind
and was ready to face
and retrace my nightmares as each one surfaced


Being able to identify triggers
is essential
to not just surviving PTSD
but
to actually living with PTSD
In the past
triggers would escalate me out of control
I didn’t understand what was happening
And therefore
was unable to process
My normality which allowed me to cope
was
to be in control
have total structure
OCD to the max
keeping so busy so as not to remember

Today
I understand
I do have PTSD
I will always have PTSD
You cannot endure as much trauma as I have
and escape unscathed
But I am identifying the triggers
much more quickly
and in identifying them
I can deal to them

I haven’t quite got to identifying them
at trigger point
prior to the reaction
But I am processing
so much more quickly
I am also able to verbalise the situation ‘much more better’
Which for me
helps the processing
builds my emotional strength
allows me to understand
and share my self more easily
And lessens the feelings
of inadequacy
of hopelessness
of neediness
of ‘crazy woman status’

Over the past months
I have had several ‘meltdowns’
which I have been able to confront face on
Each trigger a reaction to different traumatic life experiences
Activating a neurobiological response from my amygdala
I go into instant ‘fright’ or ‘flight’ mode
I become anxious, frightened, out of rational control
But thankfully now
that is only for a short time

The reality of living with PTSD
is the ongoing
underlying
‘just have to live with’
stuff –
the sleeplessness
the inability to focus
the fluctuations
– emotional numbing
– emotional excess
the hypervigilance
the adrenal fatigue

Through my many many sessions with my therapist
(I still cannot believe she has never given up on me!!)
my work with other abused & traumatised women
and researching the ways trauma effects the brain
especially a young developing child’s
learning big words 😉
like
amygdala
hippocampus
ventromedial prefrontal cortex

I have learned to manage, conquer or control many of my symptomatic responses
-the intrusive thoughts of unwanted memories
-the flashbacks
-the mood alterations
-the shame, blame, persistent negativity
-the avoidance
-the depression

When I get gutshot by a PTSD trigger
I can now
identify it
deal to it
let it go – (why does that want to make me burst into song 😉 )
and use it to help others

The Becca Lee poem at the top really speaks from and to my heart
She summarises me perfectly
If you have managed to read through to the bottom of this
please go back and read about ‘me’
I’ve written previously about my phoenix rising from the ashes
this rebirth of mine
the growth from the pain
which has made me the woman I am today
I would gladly have traded all that pain whilst enduring it
But now
today
where I am right now
I can honestly say
I am ok

In fact today
I don’t just think
I’m ok
I know
I am doing
Absolutely brilliantly!

But if you are with me on the days when I am not doing quite so brilliantly
Please be a just little forgiving xxx

Farewell to 2016

Well…. 2016 you have gone.
Disappeared into the realms of time along with all the previous years of my decades.
Not too sure if I’m going to miss you much, although there were some good times in there along with the not so great.
I was mulling over the following questions that Sunniva posed prior to New Year but never got to do more than ponder them.
But now I might just take a very quick look back…
…very quick because actually I am too busy looking forward to spend too much time looking back these days.
But like Kermit….

sometimes it is good to stop and have a look back and then you see how far you’ve actually come.

So on to the questions Sunniva posed…

What did you achieve?
I achieved the ability to not sweat the small stuff and to allow those who had my back to help carry the stresses of the big stuff.

What did you love most?
I learned to love myself.
For the first time in my life I found me.
I love the freedom that has brought me

What made you feel successful?
Learning to make decisions without fear
Learning that if something isn’t working it is not a failure.
That changing direction is ok.

What was positive about it?
I made it through the darkest period since Tim’s death, alive & sane
And not only did I make it through, I came bounding out of that dark place and embraced my future with excitement and anticipation

How did you grow?
I pushed myself out of my comfort zone.
I fought my boundaries
I went to war with my beliefs and traditions
I began forging my own path

How have you changed?
I have become more positive,
stronger within myself,
taken ownership of my future
and am learning to be completely honest about my past

What did you learn?
I learned that friends are vital.
That some are with me just for a season.
And that’s ok.
And that others will remain glued at the hip.
They will always have my back.
I learned who to trust and how to trust
and to use my past because in that sharing comes growth for me and healing for others

Where did you travel?
I traveled to Perth
and Auckland & Waikato
and Christchurch
and Byron Bay & Brisbane
and Wellington
Each journey brought me to a new place in experiences and in personal growth

Who do you appreciate?
I appreciate my friends.
I appreciate my children
And my health
And my home
And my place in this corner of the world
I have finally come home and I am content and appreciative for that.

Who influenced you?
Oh My!
The influences this year have been wonderful.
From the famous to those close to me.
Taryn Brumfitt – you are such an inspiration
Just this one quote alone from you has changed my life
“MY BODY IS NOT AN ORNAMENT, IT IS THE VEHICLE TO MY DREAMS”
Constance Hall – you rock our world.
Your raw honesty and humour is so refreshing.
My favourite quote from you would have to be this –
“Your summer body is your winter body with a bigger audience. 
Scales define weight. 
Happiness defines beauty
Summer + body = summer body.”
And there are those close to my inner sanctum who listen and who share and with whom I laugh and cry.
Their influence in my life is immeasurable.
Names are not necessary because you know who you are and I love you dearly for that

What are you grateful for?
I am grateful for my health and wellbeing.
I am incredibly grateful for the years I spent with Tim but am also grateful that he lovingly released me to find myself.
And I am grateful that I know without doubt that he would be incredibly proud of where I am now.
I am also incredibly grateful for my warrior tribe.
My tribe of extremely close friends that have embraced and surrounded me during this year.

And yes I did celebrate New Years Eve.
I walked into the city with my two girls.
We enjoyed the last meal of 2016 together at Bacco WineBar


Mahalia went off with Sophie, and Azzan was off somewhere in the crowds with his friends.

Eilidh and I milled with the crowds at the Cathedral Steps, danced to Tomorrow People’s reggae music, absorbed the atmosphere, drank mochas to keep warm, and just had a wonderful time.
Happy New Year everyone – Welcome 2017   🙂


 

Young woman, Precious girl

Young woman
Precious girl
I see you
I see your trembling lip
The uncertainty in your eyes
The small tear escaping
I see your strength
I see such courage
I see you
And my heart is breaking
My heart breaks every time I encounter you
because I know
I know exactly what you are feeling
What you are thinking
because in you
I see me
I see Young Woman me

Your life has been changed
in a moment
a moment you did not choose
a moment that robbed you of so much
of your innocence
of your trusting
of you

Young woman
Precious girl
I encourage you to stand strong
to speak out
as loudly as you dare
knowing that I stand
I stand beside you
to hold you until you are strong enough to stand
beside the next
Precious girl

Because I know
we know
there will be more
there are so many more
too many more
look around your friends precious one
the statistics tell us
that 1 of every 3 of your friends will be sexually assaulted before they are 17
the statistics tell us that living in New Zealand
the place we call Godzone
is one of the most dangerous places for you to be
Sexual assault in New Zealand is endemic
a far too silent epidemic
the silence is deafening…

Young woman
Precious girl
I understand your need for silence
in your silence you find normalcy
when something so heinous
so evil
so invasively devastating to your inner being
happens to you
you crave in anyway possible for everything to be ‘the way it was’ before

Precious one
if your silence is for normalcy
then be silent for as long as you need
be silent while you build strength
be silent and know that I am walking with you

But
if your silence is because of shame
then my Precious One
this is so NOT right
This burden
this shame
Is NOT Yours
Do you hear me?
I will shout this from the rooftops if I have to
Do NOT carry the shame of another
It is NOT yours to carry.

Young woman
Precious girl
be brave
take courage
knowing that we are walking beside you
we are breathing fire
as we fight for you
until you can breath your own fire.

Young woman
Precious girl
my heart is breaking
I love you

Becoming Woman – A Wild Warrior Woman

I’ve been exploring my wild self.
Learning about me
My inner innate self
Peeling back layers of societal constraint
Pushing myself out of my comfort zone
Questioning
all my pre-learned norms

Discovering that being a wild woman has nothing to do with
doing wild things
or stomping on male egos

It is about embracing your true natural self.
For one
that may be loud and out there – whirling through life in dervish excitement
for another
that is could be silent and contemplative
and everything in between
and maybe even at the same time

It is the woman who wants to break free from all the strings society has placed on her to find herself in the heart of love and compassion

A few days ago I experienced a sudden awakening
I know what happened…
…physically
that I will never ever forget
I have learnt how it has damaged me
…emotionally
…mentally
that I am recovering and healing from

But the light went on with a suddenness that kicked me in the gut
it was like a lightening bolt hit me
I saw with incredible clarity
As a child
I was completely Mind Fucked
My God!
It wasn’t my fault.
I knew it wasn’t my fault
I know it wasn’t my fault
But
Now
I
Know
None
Of
It
Was
My
Fault!
The release of shame
and guilt
and the burden
with that understanding
has been immense

I have been entrenching myself in this song
Soaking in the words
Whirling to the music
Unfucking myself
Claiming my Warrior Woman
And allowing this brave heart of mine to shine

“Warrior” – Aurora
I fall asleep in my own tears
I cry for the the world, for everyone
And I built a boat to float in
I’m floating away

I can’t recall last time I opened my eyes to see the world as beautiful
And I built a cage to hide in
I’m hiding, I’m trying to battle the night…

Let love conquer your mind
Warrior, warrior
Just reach out for the light
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior of love…

I stand behind the wall of people and thoughts, mind controlling
And I hold a sword to guide me
I’m fighting my way…

I can’t recall last time I opened my eyes to see the world as beautiful
And I built a cage to hide in
I’m hiding, I’m trying to battle the night…

Let love conquer your mind
Warrior, warrior
Just reach out for the light
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior of love!

Underneath darkened sky
There’s a light kept alive

Let love conquer your mind
Warrior, warrior
Just reach out for the light
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior of love…
Warrior of love!
Warrior of love!

Watch my rising….


My journey has at times been rather a ponderous hesitant walk.
I’ve staggered under burdens
of expectations
of abuse
of self imposed protective measures
of responsibilities.
Many parts of the road have been incredibly rough going.
Often times I’ve approached corners with hopeful expectancy only to be blind sided once again.
Treacherous valleys, difficult hills, swamps have sucked me in and nearly suffocated me.
My path this year led me over the blackest coldest mountain range…

I fought my way up those high peaks
I collapsed at the top panting with exhaustion
Completely spent
I could go no further
I was finally stopped
I let myself bleed
Let myself feel
I
Let
It
Go

I conquered the pain
I conquered the fears
I conquered the blackness

No longer will I run away from my dragons
I will fear them no more
I am embracing my dragons
They now work for me,
with me,
are part of me,
but no longer control me
The roles are reversed
And it feels
SO
Damn
Good

Pain – April 2013

I turn on the electric blanket to ensure the bed is warm.

I lie on my left side, with my back to the empty half behind me.
I read to fill the silence of the night.
But when my book hits the floor and I cannot keep my eyes open any more I turn off the light and try to go to sleep.

It is dark now.
Safe to turn over.
I can’t see the empty other half of my bed.
But my leg reaches out, searching, looking for what cannot be found.
It only feels cold sheets.
No warm body there to wrap myself around.
I toss and turn.
My stomach aches.
My limbs twitch and stretch, constantly searching.
Looking for arms to hold me.
Hands to caress me, love me.

I want to sleep, to forget.
But the ache is so bad.

The ache in my gut rises.
Up through my chest and into my throat.

Until I can contain the tears no more.
I give in and the sobs rack my whole being.
I cry, uncontrollably into my pillow.
The pain is so bad.
The loneliness is overwhelming.
The knowing that he is gone.
Eventually the tears drown me to sleep

Sparkling living

This journey of mine has taken me on many detours.
Some have been incredibly hard.
Others frustrating.
And more, emotionally disabling.
Through it all though I have found a new me.
A stronger me.
Someone I did not know existed.
Many close to me have recently commented that they are so pleased and glad to see me smiling again.
It was said that I have my spark back.
That stopped me…
To breath…
And think…
I honestly do not ever remember having a spark.
Not like this.
Never.
Maybe as a very small child I probably had that childish spark of mischief and wonderment.
Like this gorgeous poppet I captured at the beach last week.
img_2056
But that spark was cruelly extinguished at a very early age.
Yes, I was happy – to an extent.
But there was always that underlying ‘thing’
The part of my life I wasn’t able to talk about…
The secret…
The burden I carried…
that killed my spark.

I had no idea until recent years just how much those 10 years of stolen childhood had affected my entire life.
But now I am walking my healing journey
Running towards an expectancy of wonderment
Reclaiming ‘me’
I am not going to compromise myself anymore with the pain and the abuse and the heartache.
Because I Am all I have got and I Am going to live sparkling.
img_1069

Farewelling the Master

What words do you use to describe the loss of one who has had so much influence in your life.
One who’s words speak into the depths of your soul.
One who moved you so powerfully through all of your decades.
One who’s words and music soothed and loved you during the hardest time of your life.

I cut my teen teeth on this album.
Who doesn’t know ‘Suzanne’ and So long, Marianne’?
songsofleonardcohen

In latter years Leonard came to New Zealand three times.
I so wanted to go to that first concert in Wellington, but it was on my birthday in mid January –  at a time of the year I thought I couldn’t possibly get away from the farm due to the tourist season etc.
Sadly I never even tried to make it work.
That became my biggest regret.

When he returned in November 2010 I was absolutely determined I was going.
I travelled to Christchurch and had my socks completely blown off!
He was so much more than I had ever dreamed of.
The only sad thing was that I was there on my own and had no one to share the absolute delight with.

Then, he became far far more intensely involved with my life.
I have always loved words.
As a writer words touch & feed my heart and soul, the ebb & flow of them between myself and other writers is what makes me tick.

When Tim was killed Leonard bathed my soul with all his songs.
He embraced my hurting heart with these two specifically ….
Hey, That’s No Way To Say Goodbye‘ 
I loved you in the morning, our kisses deep and warm, 
your hair upon the pillow like a sleepy golden storm, 
yes, many loved before us, I know that we are not new, 
in city and in forest they smiled like me and you, 
but now it’s come to distances and both of us must try, 
your eyes are soft with sorrow, 
Hey, that’s no way to say goodbye. 
I’m not looking for another as I wander in my time, 
walk me to the corner, our steps will always rhyme 
you know my love goes with you as your love stays with me, 
it’s just the way it changes, like the shoreline and the sea, 
but let’s not talk of love or chains and things we can’t untie, 
your eyes are soft with sorrow, 
Hey, that’s no way to say goodbye. 

I loved you in the morning, our kisses deep and warm, 
your hair upon the pillow like a sleepy golden storm, 
yes many loved before us, I know that we are not new, 
in city and in forest they smiled like me and you, 
but let’s not talk of love or chains and things we can’t untie, 
your eyes are soft with sorrow, 
Hey, that’s no way to say goodbye.

‘Ain’t No Cure For Love’
I loved you for a long, long time 
I know this love is real 
It don’t matter how it all went wrong 
That don’t change the way I feel 
And I can’t believe that time’s 
Gonna heal this wound I’m speaking of 
There ain’t no cure, 
There ain’t no cure, 
There ain’t no cure for love 
I’m aching for you baby 
I can’t pretend I’m not 
I need to see you naked 
In your body and your thought 
I’ve got you like a habit 
And I’ll never get enough 
There ain’t no cure, 
There ain’t no cure, 
There ain’t no cure for love 

There ain’t no cure for love 
There ain’t no cure for love 
All the rocket ships are climbing through the sky 
The holy books are open wide 
The doctors working day and night 
But they’ll never ever find that cure for love 
There ain’t no drink no drug 
(Ah tell them, angels) 
There’s nothing pure enough to be a cure for love 

I see you in the subway and I see you on the bus 
I see you lying down with me, I see you waking up 
I see your hand, I see your hair 
Your bracelets and your brush 
And I call to you, I call to you 
But I don’t call soft enough 
There ain’t no cure, 
There ain’t no cure, 
There ain’t no cure for love 

I walked into this empty church I had no place else to go 
When the sweetest voice I ever heard, whispered to my soul 
I don’t need to be forgiven for loving you so much 
It’s written in the scriptures 
It’s written there in blood 
I even heard the angels declare it from above 
There ain’t no cure, 
There ain’t no cure, 
There ain’t no cure for love 

There ain’t no cure for love 
There ain’t no cure for love 
All the rocket ships are climbing through the sky 
The holy books are open wide 
The doctors working day and night 
But they’ll never ever find that cure, 
That cure for love

And of course the absolute ultimate song which we played at Tim’s funeral.
‘Dance me to the End of Love’
Dance me to your beauty with a burning violin 
Dance me through the panic ’til I’m gathered safely in 
Lift me like an olive branch and be my homeward dove 
Dance me to the end of love 
Dance me to the end of love 
Oh let me see your beauty when the witnesses are gone 
Let me feel you moving like they do in Babylon 
Show me slowly what I only know the limits of 
Dance me to the end of love 
Dance me to the end of love 

Dance me to the wedding now, dance me on and on 
Dance me very tenderly and dance me very long 
We’re both of us beneath our love, we’re both of us above 
Dance me to the end of love 
Dance me to the end of love 

Dance me to the children who are asking to be born 
Dance me through the curtains that our kisses have outworn 
Raise a tent of shelter now, though every thread is torn 
Dance me to the end of love 

Dance me to your beauty with a burning violin 
Dance me through the panic till I’m gathered safely in 
Touch me with your naked hand or touch me with your glove 
Dance me to the end of love 
Dance me to the end of love 
Dance me to the end of love

Christian came down and spent his time creating a slideshow for me.
I was so busy getting the funeral organised that I never had time to see what he was doing.
Then the night before I finally caught my breath and asked him if I could watch it.
It was so beautiful, but the pain hit me so hard I crumbled and cried and cried and cried.
It was such a blessing.
If I hadn’t seen it then I would have totally lost it at the church and not have had the strength to speak.
I am forever grateful to Christian for making this video.
It is a real treasure for us.

When Leonard returned for a third time in Dec 2014 I was there with bells on!
This time I went with friends.
The best way to see a show is with friends to enjoy it with.
And this show was THE absolute best.
He was 80 years old and like a good wine he certainly aged well.
rs-168075-180643643

As a poet, a wordsmith, a singer, a man.
You had such presence.
Leonard, you will always have my respect and a part of my heart.