Living with PTSD

Back on the day 6 years ago that I was finally diagnosed with PTSD
It was such a relief
To know I wasn’t crazy
I was just broken
a traumatised soul
But
In the identifying
and the confronting
and the search for answers
I had no idea what lay in front of me.
I knew what was behind me
And I wanted no more of that
So I turned forwards
started the healing
facing the demons
But as I did they would attack with greater ferocity
biting at my heels
attacking with force the closer I got to identifying each one
Sometimes it felt like one step forward and ten back
I would break
and fall apart
thinking what was the point
it is all just way too hard


But finally
I found my courage
I sourced that inner strength
that had maintained me throughout those traumas
I was able to embrace the education of my mind
and was ready to face
and retrace my nightmares as each one surfaced


Being able to identify triggers
is essential
to not just surviving PTSD
but
to actually living with PTSD
In the past
triggers would escalate me out of control
I didn’t understand what was happening
And therefore
was unable to process
My normality which allowed me to cope
was
to be in control
have total structure
OCD to the max
keeping so busy so as not to remember

Today
I understand
I do have PTSD
I will always have PTSD
You cannot endure as much trauma as I have
and escape unscathed
But I am identifying the triggers
much more quickly
and in identifying them
I can deal to them

I haven’t quite got to identifying them
at trigger point
prior to the reaction
But I am processing
so much more quickly
I am also able to verbalise the situation ‘much more better’
Which for me
helps the processing
builds my emotional strength
allows me to understand
and share my self more easily
And lessens the feelings
of inadequacy
of hopelessness
of neediness
of ‘crazy woman status’

Over the past months
I have had several ‘meltdowns’
which I have been able to confront face on
Each trigger a reaction to different traumatic life experiences
Activating a neurobiological response from my amygdala
I go into instant ‘fright’ or ‘flight’ mode
I become anxious, frightened, out of rational control
But thankfully now
that is only for a short time

The reality of living with PTSD
is the ongoing
underlying
‘just have to live with’
stuff –
the sleeplessness
the inability to focus
the fluctuations
– emotional numbing
– emotional excess
the hypervigilance
the adrenal fatigue

Through my many many sessions with my therapist
(I still cannot believe she has never given up on me!!)
my work with other abused & traumatised women
and researching the ways trauma effects the brain
especially a young developing child’s
learning big words 😉
like
amygdala
hippocampus
ventromedial prefrontal cortex

I have learned to manage, conquer or control many of my symptomatic responses
-the intrusive thoughts of unwanted memories
-the flashbacks
-the mood alterations
-the shame, blame, persistent negativity
-the avoidance
-the depression

When I get gutshot by a PTSD trigger
I can now
identify it
deal to it
let it go – (why does that want to make me burst into song 😉 )
and use it to help others

The Becca Lee poem at the top really speaks from and to my heart
She summarises me perfectly
If you have managed to read through to the bottom of this
please go back and read about ‘me’
I’ve written previously about my phoenix rising from the ashes
this rebirth of mine
the growth from the pain
which has made me the woman I am today
I would gladly have traded all that pain whilst enduring it
But now
today
where I am right now
I can honestly say
I am ok

In fact today
I don’t just think
I’m ok
I know
I am doing
Absolutely brilliantly!

But if you are with me on the days when I am not doing quite so brilliantly
Please be a just little forgiving xxx

Discovering my Phoenix

Wow!
Just realised it has been a month since I last wrote a post.
I really have claimed my freedom!
For over 10 years I updated on a daily basis
And to have now given myself the freedom to write when I want and not feel any pressure is amazing.

One thing that people closest to me know is that I am inclined to be rather spontaneous.
Some may call it impulsiveness 😉
So I do have to curb myself at times.
I have learned over the years to take a big breath before responding to things, to hesitate long before pushing the Send button – often leaving a response until I have calmed enough to Bin it!
But I have also learned that spontaneity is a marvellous thing.
It can take you places you never dreamed of and would never go if you thought twice.

Over the past months I have had a desire building within to do something
Just for me
It is something that I have never before ever wanted, and was also quite opposed to for years.
It did seem somewhat impulsive at first
But I held myself in check, addressed it cautiously over a period of months

The desire came from a place deep within.
From the depths of my survivors soul.
Something to mark my rite of passage in a way.
I have spent months and months thinking it through
Discussed it only recently and very tentatively with one or two closest to me.
I decided that it would be my birthday present to myself.
It was going to be a one time forever thing so I had to think long and hard.
Ensure that what I did was absolutely right
And the person who did it had to be empathetic to this tattoo virgin.
After several enquiries I finally found Pete upon recommendations of several friends.
I met with him and we talked it all through.
He was so lovely, sensitive to my needs and wants.
After some discussion he set about to draw my design for me and sent me home to sort out the script & font.

The appointed day arrived and on the 26th January I rocked up at 9am with a excitement & anticipation, and a just a wee tad of trepidation.
2 hours later I left
Absolutely delighted with the results

I am ever so grateful for the hand above that held mine throughout the process
Yes, it did hurt – at times
And that hand was squeezed incredibly hard – at times
But it wasn’t unbearable because I really wanted it.

I chose the phoenix because it is representative of transformation
My personal transformation from victim to warrior

It is a symbol of my renewal, strength & power.

The words I thought long and hard over
Finally deciding on this Latin line
Illa alis volat propriis 
which translates as
She flies with her own wings

I have spent years on this journey
I have learnt and in fact am still learning to fly with my own wings
It is a daily process to brush off my feathers
Spread my wings
Project myself into new unknowns
Rising up with renewed strength each day

It is so joyful to be able to be happy
To be completely unconcerned as to what people think
To finally be so in tune with myself and my body
That at this age
My age
The number I was so freaked out about attaining
I can be myself at the beach with my young beach babes
Be unafraid of the camera lens
In fact I can be proud of me
Cuz actually
I have decided that I am pretty damned awesome 🙂

 

Measuring growth

exposing vulnerabilities
scary stuff
really scary stuff

but in exposing my own vulnerabilities I am growing
and in growing myself I allow others to grow

So I am going to go right out there in this post and tell it…

I have been working hard over the past few years to heal
It’s been damned hard
But the growth I have experienced in the past few months has been immeasurable.
I have been flying on all cylinders
It has been an amazingly exhilarating ride

So….. recently when I experienced some health issues and I went into total meltdown over them I was like WTF?
This can’t be happening to me
I can’t do this over again
I am over all this
I’m in a such good place now
Why?………

After the 3rd thing in less than 2 months I marched right on into my therapist’s rooms this week and announced that she needed to help me unfuck my head!
In retrospect I know that in itself is a sign of immense growth for me because normally I spend my sessions duckshoveling and talking about everything and anything except me!

So here goes…..
She talked me through what was happening –
I learned that it is perfectly normal for any of us to imagine the worst when hit with a medical issue.
Absolutely normal!

But anyone like me who has PTSD will go there way more severely.
When you have experienced trauma and personal loss the fragility of life makes you so much more vulnerable.
There is…
-incredible fear
-losing control
-feeling like the rug has been pulled out from under your feet
This is something that PTSD sufferers fear greatly
Having no control over what happened to us at the time of the event/s is the cause of the triggers when we lose control in the now.
Being in control is how we feel safe
Hence OCD is often symptomatic of PTSD

These past two weeks I have had a couple of events which triggered me severely.
I visited a skin specialist because I figured that at my age and stage in life, with my skin type, and living here in New Zealand it was a wise thing to do.
However, I was unprepared for having several ‘things’ cut off of me and even more unprepared to hear that one of them was ‘of concern’.
The area of concern was on the back of my thigh.
My head immediately took me back many years when we lost a friend to melanoma – and yes his began with a spot right there!
Instant meltdown
Tears for hours as I processed
Thank God for friends who don’t mind damp shoulders

Six days later I was sitting at the computer early in the morning chatting with my daughter online when I began to feel something strange in my face.
Eilidh came in a few moments later and looked at me…
‘Your face is swollen’ she commented in a puzzled tone
That was the beginning…
The left side of my face went puffy, and hot, and numb, and the vision in my left eye went blurry, like a haze was over it….
I was feeling very weird
Nothing I could pinpoint specifically, but I was beginning to freak out.
My mind was taking me places again, places I didn’t want to go, but because of association with my father’s strokes etc, it went there real fast.
I had to go pick up Azzan and when I did he was ‘Mum go straight to the Dr. Don’t take me home, just go to the Dr’.
So I did.
I was seen by the nurse.
All vitals were fine.
I was feeling like a total drama queen.
She referred me straight through to the Dr – stating that obviously if it was serious enough for me to walk in knowing there was something wrong, it was serious enough to see the Dr.
Validation felt good.
Saw the Dr and he eventually diagnosed shingles.
Whew!
That I can handle.
The strep throat that had taken me a month to recover from pre Xmas had obviously lowered my immune system enough to allow the virus to activate.
I asked him what would’ve happened if I hadn’t come in?
‘You could’ve gone blind in that eye’ he said.
Woah!!
Ok!
More validation that I know my body and in future not to doubt myself.
But I had crashed emotionally – again.

The next day I received reassurance from my therapist that I was not going mental, I was not losing it, I was not regressing, was in fact doing a very healthy thing.
I was allowing myself to feel.

My normal PTSD response in the past has been to feel hopeless, collapsed, stuck, to have a knee jerk reaction when things hit the fan.
This is absolutely the norm to those of us stuck in the Drama triangle.
I know this.
I know it too well from far too many years of being stuck in there.
So for me now it is a NO GO ZONE.
It is Not Safe there
It is a place I Don’t Want To Go anymore

By taking ownership of my emotions
By naming my vulnerabilities
I am learning skills to live in a positive confronting way
I will not hide
I am exposing my scars
They are my tattoos of bravery
I am a Survivor!
I am a fricken badass Winner!

Talking through my needs
Helped me to see why I reacted the way I did and do…
built knowledge
built positivity
built strength
Because I have suffered sexual abuse during my childhood my trust was broken at an incredibly vulnerable time of my life by a person who I should’ve been able to trust.
Because of unreliable and inconsistent support in the past I have built barriers.
I have put up walls to protect me.
Because of the trauma of close loss and grief I am lacking the one thing I need
The one person who would hold and comfort me at times like this
That exposes my fragilities and vulnerabilities even more
It is downright scary stuff
When I am wounded my initial reaction has always been to go curl up in a corner like a wounded puppy, snapping and biting at any hands who dare to try help me

I have to learn how to let people in…
I am learning now how to let people in…
safely
I am learning to identify my needs
What does my fragile self need in these situations?
– honest support
– acknowledgement that it is scary
– validation
– to be heard
– to be reassured
– to feel safe
I have been building a door in my wall
I get to choose to open that door
to let in the trusted few

Thank God for trusted friends I feel safe with
I have built a small strong tribe of very special people in my inner sanctum
Some of whom have been there for me this past week especially while I have been in freakout mode

Phillipa you have always been my bestest friend, I don’t know where I would be without you
You have held me during some of the hardest times of my life
We have shared so much these past 25 years – I think our shoulders are equally wet and our laughter equally joyous

Spending time in the sunshine with Eilidh over these days has been so therapeutic as she has helped to blow away my fears
Love this girl – we are therapy for each other

And this guy
This spesiale strooijonker vfriend
(Who’s gonna laugh his arse off at my puny attempt at Afrikaans 😉  )
Who listens for hours on the phone
Who can handle my tears as I soak my pillow
Who always has an objective view
Eddie my man, my best mate – you are just one super cool dude and I thank you for being a part of my life
Thank you for making me laugh
Thank you for bringing the music back to my soul

And Renata – my beautiful forthright unreservedly outspoken and delightedly honest friend…
thank you for letting my cry all over your sushi this week
thank you for your support and and your love and your laughter

I’m past caring who sees me cry these days
If you can’t share my tears then you don’t deserve my laughter

I am growing through this
And so can you….
I will never be the same
You will never be the same
Trauma changes us
True story~!

If you are a PTSD sufferer
then take my advice
Find someone safe
someone you can trust
someone who understands your fragility
someone who can empathise
someone you feel safe with

But ultimately
Allow yourself to FEEL
Allow yourself to be BRAVE

Young woman, Precious girl

Young woman
Precious girl
I see you
I see your trembling lip
The uncertainty in your eyes
The small tear escaping
I see your strength
I see such courage
I see you
And my heart is breaking
My heart breaks every time I encounter you
because I know
I know exactly what you are feeling
What you are thinking
because in you
I see me
I see Young Woman me

Your life has been changed
in a moment
a moment you did not choose
a moment that robbed you of so much
of your innocence
of your trusting
of you

Young woman
Precious girl
I encourage you to stand strong
to speak out
as loudly as you dare
knowing that I stand
I stand beside you
to hold you until you are strong enough to stand
beside the next
Precious girl

Because I know
we know
there will be more
there are so many more
too many more
look around your friends precious one
the statistics tell us
that 1 of every 3 of your friends will be sexually assaulted before they are 17
the statistics tell us that living in New Zealand
the place we call Godzone
is one of the most dangerous places for you to be
Sexual assault in New Zealand is endemic
a far too silent epidemic
the silence is deafening…

Young woman
Precious girl
I understand your need for silence
in your silence you find normalcy
when something so heinous
so evil
so invasively devastating to your inner being
happens to you
you crave in anyway possible for everything to be ‘the way it was’ before

Precious one
if your silence is for normalcy
then be silent for as long as you need
be silent while you build strength
be silent and know that I am walking with you

But
if your silence is because of shame
then my Precious One
this is so NOT right
This burden
this shame
Is NOT Yours
Do you hear me?
I will shout this from the rooftops if I have to
Do NOT carry the shame of another
It is NOT yours to carry.

Young woman
Precious girl
be brave
take courage
knowing that we are walking beside you
we are breathing fire
as we fight for you
until you can breath your own fire.

Young woman
Precious girl
my heart is breaking
I love you

Becoming Woman – A Wild Warrior Woman

I’ve been exploring my wild self.
Learning about me
My inner innate self
Peeling back layers of societal constraint
Pushing myself out of my comfort zone
Questioning
all my pre-learned norms

Discovering that being a wild woman has nothing to do with
doing wild things
or stomping on male egos

It is about embracing your true natural self.
For one
that may be loud and out there – whirling through life in dervish excitement
for another
that is could be silent and contemplative
and everything in between
and maybe even at the same time

It is the woman who wants to break free from all the strings society has placed on her to find herself in the heart of love and compassion

A few days ago I experienced a sudden awakening
I know what happened…
…physically
that I will never ever forget
I have learnt how it has damaged me
…emotionally
…mentally
that I am recovering and healing from

But the light went on with a suddenness that kicked me in the gut
it was like a lightening bolt hit me
I saw with incredible clarity
As a child
I was completely Mind Fucked
My God!
It wasn’t my fault.
I knew it wasn’t my fault
I know it wasn’t my fault
But
Now
I
Know
None
Of
It
Was
My
Fault!
The release of shame
and guilt
and the burden
with that understanding
has been immense

I have been entrenching myself in this song
Soaking in the words
Whirling to the music
Unfucking myself
Claiming my Warrior Woman
And allowing this brave heart of mine to shine

“Warrior” – Aurora
I fall asleep in my own tears
I cry for the the world, for everyone
And I built a boat to float in
I’m floating away

I can’t recall last time I opened my eyes to see the world as beautiful
And I built a cage to hide in
I’m hiding, I’m trying to battle the night…

Let love conquer your mind
Warrior, warrior
Just reach out for the light
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior of love…

I stand behind the wall of people and thoughts, mind controlling
And I hold a sword to guide me
I’m fighting my way…

I can’t recall last time I opened my eyes to see the world as beautiful
And I built a cage to hide in
I’m hiding, I’m trying to battle the night…

Let love conquer your mind
Warrior, warrior
Just reach out for the light
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior of love!

Underneath darkened sky
There’s a light kept alive

Let love conquer your mind
Warrior, warrior
Just reach out for the light
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior
I am a-yeah-yeah-yeah-yeah
Warrior, warrior of love…
Warrior of love!
Warrior of love!

Watch my rising….


My journey has at times been rather a ponderous hesitant walk.
I’ve staggered under burdens
of expectations
of abuse
of self imposed protective measures
of responsibilities.
Many parts of the road have been incredibly rough going.
Often times I’ve approached corners with hopeful expectancy only to be blind sided once again.
Treacherous valleys, difficult hills, swamps have sucked me in and nearly suffocated me.
My path this year led me over the blackest coldest mountain range…

I fought my way up those high peaks
I collapsed at the top panting with exhaustion
Completely spent
I could go no further
I was finally stopped
I let myself bleed
Let myself feel
I
Let
It
Go

I conquered the pain
I conquered the fears
I conquered the blackness

No longer will I run away from my dragons
I will fear them no more
I am embracing my dragons
They now work for me,
with me,
are part of me,
but no longer control me
The roles are reversed
And it feels
SO
Damn
Good

Pain – April 2013

I turn on the electric blanket to ensure the bed is warm.

I lie on my left side, with my back to the empty half behind me.
I read to fill the silence of the night.
But when my book hits the floor and I cannot keep my eyes open any more I turn off the light and try to go to sleep.

It is dark now.
Safe to turn over.
I can’t see the empty other half of my bed.
But my leg reaches out, searching, looking for what cannot be found.
It only feels cold sheets.
No warm body there to wrap myself around.
I toss and turn.
My stomach aches.
My limbs twitch and stretch, constantly searching.
Looking for arms to hold me.
Hands to caress me, love me.

I want to sleep, to forget.
But the ache is so bad.

The ache in my gut rises.
Up through my chest and into my throat.

Until I can contain the tears no more.
I give in and the sobs rack my whole being.
I cry, uncontrollably into my pillow.
The pain is so bad.
The loneliness is overwhelming.
The knowing that he is gone.
Eventually the tears drown me to sleep

Sparkling living

This journey of mine has taken me on many detours.
Some have been incredibly hard.
Others frustrating.
And more, emotionally disabling.
Through it all though I have found a new me.
A stronger me.
Someone I did not know existed.
Many close to me have recently commented that they are so pleased and glad to see me smiling again.
It was said that I have my spark back.
That stopped me…
To breath…
And think…
I honestly do not ever remember having a spark.
Not like this.
Never.
Maybe as a very small child I probably had that childish spark of mischief and wonderment.
Like this gorgeous poppet I captured at the beach last week.
img_2056
But that spark was cruelly extinguished at a very early age.
Yes, I was happy – to an extent.
But there was always that underlying ‘thing’
The part of my life I wasn’t able to talk about…
The secret…
The burden I carried…
that killed my spark.

I had no idea until recent years just how much those 10 years of stolen childhood had affected my entire life.
But now I am walking my healing journey
Running towards an expectancy of wonderment
Reclaiming ‘me’
I am not going to compromise myself anymore with the pain and the abuse and the heartache.
Because I Am all I have got and I Am going to live sparkling.
img_1069

Strength in the night….

This past week…
Wow!
What a week.
Trying to process it all has been huge.
The demise of the master.
Then the destruction of a masterpiece.
There were not too many Kiwis who will forget the time 00:02 and the date 14 November 2016.
The terror of being awoken by the ominous rumbling and the violent shaking and the darkness and the unknown damage being wrought around each of us.
For those of us fortunate enough to not lose power there was immediate and frantic checking in on Facebook and Geonet to see what was going on and ensuring loved ones were safe.
I was so grateful to have Eilidh here with me.
She and I kept each other company as unbelievably my children and pups slept through the whole night!
Texts, messages & phone calls flew between family and friends.
These vital connections helped maintain a certain calm amidst the chaos.

A sleepless night ahead as the aftershocks hit, the anxiety that any of these might be a bigger one.
In the few hours following we experienced 6 quakes larger than magnitude 5, and over the week since, 357 aftershocks over magnitude 4.
Reports unfolded as the morning developed.
And the reports have gotten worse with each daylight hour.
The enormity of the power released is unfathomable.
The east coast sea bed thrust up 2 metres with such force and speed that sea life had no chance to escape.
The GPS station at Cape Campbell was moved 2 meters north.
Towns completely cut off, isolated by huge landslides and destroyed roads, rail lines twisted and moved like cotton candy.
Two people died.
A miracle there were no more.
Many others injured and traumatised.

I managed about 2 hours sleep, then Mahalia unknowingly woke me at 6am cuz she knew I was planning to go to the gym.
Ah! The normality of life.
As Monday unfolded, unraveling of the disaster gave clarity to the desperation of the situation for the people on the East Coast.
Especially those in Kaikoura who were totally trapped.
Then Waiau, then we realised that pretty much most of the top of the South Island was not only isolated from the rest of the country but also from each other.
Then came the tsunami alerts.
The King Tides.
And then came the rain.
Flooding in Nelson, Wellington, more damage, more chaos.
I thought we had escaped pretty much unscathed but then the call came from down home.
Seb & Phoebe were evacuating by boat after watching a huge landslide flow down the hill surrounding the house & buildings and covering the road metres deep in wet slurry.
I was just grateful they were safe.
There have been many things to be thankful for in amongst all of this.
Thankful they had a home to come to.
Thankful for friends who provided emergency vehicles and household provisions until we can retrieve their things.
Now to add to the merry-go-round of my life I begin the EQC dance as we begin organising the clean up.

In the scale of the events, ours is but a small portion.
But in our personal lives it is rather devastating to say the least.
I have been standing so strong in the past months.
I have gained my warrior crown.
45699_20121104_075049_bp
I must admit that on this day it slipped.
But I am proud of myself, because I never let it fall to the ground.
I caught it and let it wash in the tears of the moment.
Then I set it straight and stood up and faced the moment head on.
c10df077d431a72e9900871a4b741d73

To sign off in true Kiwi style
Heres some humour for the occasion.
Check out this wonderful rendition by Jason Gunn.
Thanks for keeping us smiling Jason 🙂